BJHS

I have Benign Joint Hypermobility Syndrome.

After posting a couple of weeks ago how I was a medical mystery, a friend sent me information via email that led me to read about joint hypermobility syndrome. I found the diagnosis criteria online and knew it was exactly what I have. Yesterday at the Rheumatologist, it was confirmed.

What does that mean?

It means I have chronic joint pain in multiple joints. It means that I have hypermobility in my elbows. It means that my shoulders like to partially dislocate. But I already knew that. And now that I have a name for my problems, I know what to expect for the future. My condition won’t get worse like so many other joint problems out there. And while there isn’t a cure or really anything that for sure will even help, I know that I won’t have to be in a wheelchair in a few years from a deteriorating spine! Of all the possibilities that my problem could have been, this is the best scenario. Everything remains the same as it was before I found out the diagnosis, but now I can have peace of mind and learn to deal with it.

I have a referral to go to physical therapy. I also have two meds to try. The doctor told me they may or may not do anything. But either way, it’s okay. For some reason, I just feel better now because I know.

Sherron, thank you so much!